Thursday, January 21, 2010
wishing i had a time machine.
I'm working with an advocate now as we transition Elliott to special services through the school district when he turns 3 in March. If any of you have kids that need help, I highly suggest using an advocate. She knows what she's talking about, she's calm and objective, and she helps me navigate through all of the crap I'm trying to get through to get the best support for my son. Anyway, Elliott is up for evaluation through the school district in two weeks and I can't get the district to send me a consent form to let me know what tests they'll be using in the evaluation. It makes sense that I review this information BEFORE the assessment so that my consent is informed, no? But the district usually brings it with them when they perform the assessment, which doesn't make any sense at all. So anyway, I was talking to her about all of this, and she asked me if Elliott has ever received any speech therapy. One of Elliott's most significant problems is language. I've fought very hard to get him a form of therapy called ABA which addresses language but isn't speech therapy per se. Elliott has not had speech therapy and suddenly I felt like a failure. My advocate was angry with the regional center for not providing this, but I am angry at myself. How could I have missed this? Now Elliott is turning 3 and we have missed a crucial window of time to intervene early with his language acquisition and I'm so frustrated with myself. Getting any type of service from our regional center has been difficult but I don't know why it didn't occur to me to fight for BOTH instead of just one. I guess there is no going back in time, but I really wish I could right now. Elliott, I am so sorry.